The University of Rochester
Huntington's Disease Family Center

A Designated Huntington's Disease Society of America Center of Excellence

Understanding Huntington's Disease

Huntington's Disease is an inherited, progressive degenerative brain disorder that affects both mind and body. Symptoms may include involuntary movements, Personality change, depression, withdrawal, and difficulty thinking.

HD is a genetic disorder that is usually inherited within families. Both men and women have a equal chance of inheriting the gene from an affected parent. The children of an individual with HD each have a 50 percent chance of inheriting the gene.

While there is not a current cure for this disease, researchers have made significant progress and are optimistic about future treatments.

As an HDSA Center of Excellence, the goals of the Huntington's Disease Family Center are:

1) To provide quality comprehensive affordable care and education to those affected by HD and their families.

2) To assist with symptom management for individuals with HD and their families and caregivers.

3) To find treatments to slow the progression of the disease while working toward a cure through clicnical research.

Huntington's Disease Family Center

The HD Family Center is comprised of a group of neurologists, nurses, scientists, neuropsychologist, and social worker as part of the Department of Neurology who specialize in the care of individuals and families affected by HD.

We believe there is hope for improved treatments through research. We have a longstanding, internationally recognized research program that focuses on both clinical and laboratory investigations.

Services offered by HDFC:

• Comprehensive HD evaluation
• Psychological counseling for clients and families
• Genetic testing for adults who are at risk for HD
• The opportunity to participate in research activities
• Support groups for both individuals with HD and caregivers
• Referrals for social work, home care services, and equipment
• Long term care planning referrals
• Brain Donation Program

We are affiliated with Strong Memorial Hospital for Radiology, Speech Pathology, Nutrition, Physical Therapy, and Occupational Therapy.

Location

Huntington's Disease Family Center
919 Westfall Road, Bldg C, Suite 220
Rochester, NY 14618

Appointments

To schedule an appointment at the Huntington's Disease Family Center.
(585)341-7500