The Huntington's Disease Society of America (HDSA) is dedicated to:

• Eradicating Huntington's Disease (HD) through research;
• Assisting people and families affected by HD; and
• Educating the public and health care professionals about the disease

The Upstate New York Chapter of the Huntington's Disease Society of America was formed in the early 1970s to help local families cope with the devastating impact of the disease. Our mailing list includes over 600 family members, friends, and professionals in the Upstate New York area. The Chapter has a close working relationship with the HDSA Center of Excellence at the University of Rochester, which is a comprehensive care center where HD families are able to obtain medical care, counseling, access to physical and occupational therapy, genetic testing, and other elements of care. Through the National HDSA programs, the Upstate New York Chapter also supports the research being done at the University of Rochester and around the country.

Upstate New York Chapter Programs:

• Support Groups for patients and caregivers
• Information and Referral
• Newsletter
• Educational Programs
• Speaker's Bureau
• Research Support
• Camp for Persons with HD

For more information please call 585-341-7400.